FORENINGEN FOR MARFAN, LOEYS-DIETZ OG LIGNENDE TILSTANDER

Org.nr: 984 884 761

Aktiv FLI EHF

Marfanforeningen is a nationwide Norwegian association that supports individuals with Marfan syndrome, Loeys-Dietz syndrome, and related connective tissue disorders. The organization provides a supportive community, peer‑to‑peer contact, information resources, events, and advocacy for research and political influence both nationally and internationally.

Kontaktinformasjon

Adresse c/o Randi Tove Johannessen
Lokketovegen 10
5136 MJØLKERÅEN
NO

Telefon 46660006

E-post info@marfan.no

Nettside marfan.no

Bedriftsinformasjon

Stiftelsesdato 16.08.1990

Registreringsdato 20.11.2002

Næringskode (NACE) 94.992 - Fond/legat som støtter veldedige og allmennyttige formål

EHF / Peppol

Status Registrert i Peppol-nettverket

Støttede dokumenttyper Faktura, Kreditnota

Roller

Randi Tove Johannessen Chief Executive Officer

Ivar Grøneng Board Chairman

Hanne Johannessen Member

Jarl Harald Ramtjernåsen Member

Marianne Petersen Member

Sussi Pernille Jørgensen Member

NITSCHKE AS Auditor